Friday, September 14, 2012

Bilateral Total Mastectomy Recovery Status - Day 15

My Open Diary update

All 61 surgical staples were removed on Wednesday (9/12/12).  I wasn’t worried about this part or expecting any type of pain.  Actually, I didn’t know what to expect, except maybe feeling like a giant piece of paper.  In short, the nurse removed the staples with a medical staple remover.  Mark said it was like long hand held type of tool.  It did not hurt at all and nothing to stress over.  Some of them I couldn’t feel being removed due to numbness, most felt like a sticker being pulled out and a few towards the middle section felt like a BIG sticker, with a little sting.  Easy peasy.

Doc said healing is still going well, but I have to stay off of my Ogen (hormone) - forever.  When I was 29 I had to have a hysterectomy (have 1 ovary & 1 fallopian tube, everything else is gone) and went into a brief medical menopause at that time (boy was that fun), but didn’t need hormones, then.  I also went through it again a couple years ago.  Short version:  I’ve been on this hormone for 15 years and while I wanted to go natural for years, I wasn’t able to make the switch for a variety of reasons.  So, Mark & I are buckling up for this ride. 

I FINALLY was able to start sleeping in the bed Wednesday night…boy did that feel great!  I had pillows around me to not roll over.  Mark looked at me, smiled and said that he hoped he could sleep during the night with me in the bed.   I’m like, “what?”  He said my smile was so huge that the gleam from my teeth brightened the entire room – lol, he’s so funny!  Next step: sleep on my side.  That will be in the coming week or so, but at least I’m out of the recliner.

Each day I’m slowly improving and while the below may sound like I’m stuck in bed and sick 24/7, I’m not.  It’s just that some days/times are worse than others.  I’m taking good care of myself and Mark is making sure of that as well.  I’m not on any pain meds, just Tylenol when needed.  These are the symptoms I’m having to deal with either related to surgery and/or going off hormones:

Exhaust semi-easily (has improved)
Bad burning sensation/pain in upper side chest area and under arms, especially after continued use
Right arm (node biopsy) hurts worse, feels like a cell phone to a golf ball under my arm
Swelling and numbness (swelling makes above it worse)
Range of motion about 60%
Tightness across chest is less and getting better
Nausea and sick feeling
Horrid hot flashes, major sweats and other related stuff
A little blue yesterday, but not too emotional (hormones I’m sure)
My hair looks like crap (yes, this is a symptom)

Okay so there it is in a nutshell.  Now to fix a bite to eat and slowly start my awesome day.

Oh and for the last symptom, that will be remedied next Friday.  My sweet hair stylist buddy will take good care of me as usual.  I love you Chelsea!

Peace, Rocki


Mark (aka Bullwinkle) said...

For the record: Despite haveing a pillow wedged between us, I slept just fine Wednesday night! Her radiant smile did not bother me a bit!

Rocki is very strong and courageous. Together, we will get through this. I have always been, and always will be, right by her side for her to lean on when she needs. Just as she has been there for me. Which in itself is kind of comical since she's just over five feet and I'm just over six!

One thing is for certain: this moose loves his squirrel!

Carol- Beads and Birds said...

This is such a wonderful post. For you to share your experience will surely help someone through their own decision or experience.

I think this post really made me realize just how much you are going through and the ordeal your body must overcome. I knew it, but I didn't understand it.

Mark, I know that you are the kind of husband that Terry is. I wish every woman could know this kind of consideration and love.
xx, Carol

mairedodd said...

thank you, rocki, for sharing your diary... as carol said, it really could help someone going through the same thing...
time heals - and i am glad that time is making a difference for you...
and especially glad you get to go and have your hair attended to... so silly, perhaps, but those things really do help us to feel better...
and mark - it makes me so happy to know that rocki has someone like you in her life...

Rocki Adams said...

Honey, you are beyond awesome and I love you more and more each day with every breath I take! How that is possible I do not know, but I do. Thank you so much for all you do for me, even sleeping on the couch while I was stuck in the recliner! xoxo

Carol & Maire - much love to you both for your continued support! From the start of this and now, I have poured over the web for info. Now that the hardest part is over with, I vow to help others and provide as much candid info as possible. There is more to come as days go by.